Institutions for persons with disabilities
When persons with disabilities have pain, it is sometimes not perceived or
played down by the care staff.
Commission 3 reported about a facility in which no pain assessment was
Lack of knowledge
conducted. It is obvious that this is untenable particularly for a group of persons
who is reliant on a considerable amount of support services. The reasons for
this are not ostensibly the negligence of the care staff but are above all the
lack of knowledge and a complex diagnostic environment. The magazine
“Behinderte Menschen” (“Persons with disabilities”) focussed on this topic in
the No. 2/17 edition. It is particularly important to address this issue from
a human rights perspective because both the right to health (Article 25 UN
CRPD), the right to physical and mental integrity (Article 17 UN CRPD) and
in serious cases even the right to protection against violence (Article 16 UN
CRPD) or protection against degrading treatment (Article 15 UN CRPD) are
violated if pain is not treated.
It is often difficult for persons who are unable to speak and have complex
disabilities to communicate their needs. Expressions of pain in whatever form
Communication barriers
must be overcome
are sometimes not taken seriously and attributed to the respective disabilities.
This is why the caregiver has a crucial role in perceiving the sensitivities of
persons with disabilities in particular. Communication barriers that lead to
misunderstandings can only be overcome by care staff if there is a stable, longterm relationship to the clients and if they are familiar with their gesticulation
and facial expressions.
The professional support of persons with disabilities who are suffering from
pain on the part of doctors and the care staff is thus indispensable, and the
refusal to give the necessary attention is inhuman. For this reason, qualified
staff must have the necessary knowledge to notice when these persons are in
Knowledge
dissemination on
the topic of pain is
necessary
pain and take the right steps for treatment. Care staff should also be routinely
instructed in alternative pain treatments and apply the same as an alternative
or supplement to medication-based treatments. Positioning aids, suitable
seating, customised wheelchairs and the like can help to reduce pain. But
breathing exercises, reducing tension or aromatherapies are also examples of
ways of alleviating pain.
Persons with complex disabilities should not be merely passively observed,
perceived and diagnosed. In the interest of self-determination and the
independence of the clients, it is necessary to provide them with the most
suitable tools possible or to develop the same with them so that they can
communicate their needs themselves. In the Report 2016, the NPM already
criticised the frequent lack of willingness to apply supported communication.
This has considerable negative effects in the area of pain diagnosis.
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