Chapter 3. Observing the rights of the child 3. To create a state register of citizens suffering from rare/orphan diseases. 83 4. To facilitate the regulation of the accession of patients with cystic fibrosis to the European Register (ECFC Patient Registry). 5. To make changes to the National List of Essential Medicines and regulate their procurement from the budget funds. To the Ministry of Social Policy of Ukraine: 1. To ensure control over the ATCs in terms of establishing service units for children in accordance with part seven of Article 4 of the Law of Ukraine “On Bodies and Services for Children and Special Institutions for Children” # 20/95-BP of 24 january 1995. 2. To strengthen technical support for the activities of guardianship and custody bodies, service units for children, social services centres for families, children and youth. To oblast administrations and Kyiv State City administration – to take measures to prevent the restriction of children’s right to education in the context of decentralization due to the adoption by local authorities and local self-government bodies of local regulations that contradict the legislation of Ukraine on education. To executive bodies and local self-government bodies – to ensure the performance of functions in the field of protection of children’s rights provided by national legislation, in particular, the Family Code of Ukraine, the Laws of Ukraine “On Child Protection” # 2402-III of 26 April 2001, “On Ensuring Organizational and Legal Conditions of Social Protection of Orphaned Children and children Deprived of Parental Care” #2342-IV of 13 January 2005, “On the Framework of Social Protection of Homeless Persons and Homeless Children” #2623-IV of 2 June 2005, the Procedure for conducting activities related to the protection of children’s rights by the guardianship authorities, approved by the Resolution of the Cabinet of Ministers of Ukraine #866 of 24 September 2008. 3.3. Right of the child in the context of an armed conflict The armed conflict in Eastern Ukraine continues to affect the rights of the child. According to the Ministry of Social Policy, as of 31 December 2019, 197,414 children were registered as internally displaced persons. At the same time, as of the end of 2019, 39,063 children received the status of a child affected by hostilities and armed conflict, which is only 20% of the number of internally displaced children. CHAPTER 3 3. To provide systematic training to employees of service units for children and centres of social services for families, children and youth.

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