MONITORING PSYCHIATRIC INSTITUTIONS
The CRPD Committee has begun to develop standards on the subject,
which still require protocols for their implementation in practice.
It recommends in particular a move from a system of “substitute
decision-making” to one of “supported decision-making”.9 The
former is based on appointing a third party who bases their decisions
on the principle of the person’s “best interests”, sometimes even
against their will. The latter allows the persons to express their
will and preferences with someone else’s support, if necessary.
The Committee has identified examples of practices to guarantee
this right, such as the possibility of obtaining the individual’s prior
consent or of resorting to a “personal ombudsman” or even to the
testimonies of family members.
The principle of free and informed consent: practical
challenges to its implementation
The issue of situations that justify circumventing an individual’s
consent was the subject of lively debate. The participants agreed
on the need to differentiate between two very separate scenarios:
emergency situations, which present an imminent risk to the life of
the person or to others, in which the absence of treatment could
cause irreparable harm, and long-term healthcare measures for
which consent cannot be circumvented.
A consensus was reached in which situations of imminent danger
to the life of a person could justify treatment without consent. The
views and experiences of former service users illustrated the various
positions and complexity of this issue. Some believed that forced
treatment could be justified in order to save a life, while others were
of the opinion that any forced treatment is a violation of the right not
to be tortured since certain treatments can cause serious harm to
the person’s health in the medium or long-term, and should therefore
be prohibited in favour of an ongoing attempt to seek consent and
alternatives. Finally, it was clearly stated that crisis situations should
be seen to be exceptional and cannot under any circumstances form
the basis of public policy on this matter.
9
CRPD Committee, General Comment N°1 on Article 12 (Equal recognition before
the law), UN Doc. CRPD/C/GC/1, 19 May 2014, §3, http://tbinternet.ohchr.org/_
layouts/treatybodyexternal/Download.aspx?symbolno=CRPD/C/GC/1&Lang=en
19
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