CRPD/C/GC/1
who use non-verbal forms of communication to express their will and preferences. For
many persons with disabilities, the ability to plan in advance is an important form of
support, whereby they can state their will and preferences which should be followed at a
time when they may not be in a position to communicate their wishes to others. All persons
with disabilities have the right to engage in advance planning and should be given the
opportunity to do so on an equal basis with others. States parties can provide various forms
of advance planning mechanisms to accommodate various preferences, but all the options
should be non-discriminatory. Support should be provided to a person, where desired, to
complete an advance planning process. The point at which an advance directive enters into
force (and ceases to have effect) should be decided by the person and included in the text of
the directive; it should not be based on an assessment that the person lacks mental capacity.
18.
The type and intensity of support to be provided will vary significantly from one
person to another owing to the diversity of persons with disabilities. This is in accordance
with article 3 (d), which sets out “respect for difference and acceptance of persons with
disabilities as part of human diversity and humanity” as a general principle of the
Convention. At all times, including in crisis situations, the individual autonomy and
capacity of persons with disabilities to make decisions must be respected.
19.
Some persons with disabilities only seek recognition of their right to legal capacity
on an equal basis with others, as provided for in article 12, paragraph 2, of the Convention,
and may not wish to exercise their right to support, as provided for in article 12,
paragraph 3.
Article 12, paragraph 4
20.
Article 12, paragraph 4, outlines the safeguards that must be present in a system of
support in the exercise of legal capacity. Article 12, paragraph 4, must be read in
conjunction with the rest of article 12 and the whole Convention. It requires States parties
to create appropriate and effective safeguards for the exercise of legal capacity. The
primary purpose of these safeguards must be to ensure the respect of the person’s rights,
will and preferences. In order to accomplish this, the safeguards must provide protection
from abuse on an equal basis with others.
21.
Where, after significant efforts have been made, it is not practicable to determine the
will and preferences of an individual, the “best interpretation of will and preferences” must
replace the “best interests” determinations. This respects the rights, will and preferences of
the individual, in accordance with article 12, paragraph 4. The “best interests” principle is
not a safeguard which complies with article 12 in relation to adults. The “will and
preferences” paradigm must replace the “best interests” paradigm to ensure that persons
with disabilities enjoy the right to legal capacity on an equal basis with others.
22.
All people risk being subject to “undue influence”, yet this may be exacerbated for
those who rely on the support of others to make decisions. Undue influence is characterized
as occurring, where the quality of the interaction between the support person and the person
being supported includes signs of fear, aggression, threat, deception or manipulation.
Safeguards for the exercise of legal capacity must include protection against undue
influence; however, the protection must respect the rights, will and preferences of the
person, including the right to take risks and make mistakes.
Article 12, paragraph 5
23.
Article 12, paragraph 5, requires States parties to take measures, including
legislative, administrative, judicial and other practical measures, to ensure the rights of
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