area of using our data for human rights outcomes, there is very little guidance in this area and a training program specifically addressing this approach was carried out under this project. (For further information, please contact Leanne MacMillan at lm@irct.org). There are a number of human rights outcomes we can gain from the appropriate use of the clinical data we hold and a range of tools we can use from sharing individual stories as part of a communications push to raise awareness to reports with recommendations that become the basis for a sustained campaign to create change. For example, data can be used to provide evidence for an individual survivor to seek justice; we can draw on trends and patterns we see across clients in our rehabilitation practice to identify and pursue perpetrators; we can identify places where torture is more likely to occur; we can identify torture victims targeted due to their identify such as women and children, political, religious, ethnic and cultural groups. In the past few years emphasis has been placed on using clinical data for the purposes of holding States to account through research reports submitted to international treaty bodies and thematic mechanisms with some success (see the IRCT website for current information on country and thematic reports at UN and regional mechanisms). A new challenge for rehabilitation service providers and the sector itself is to gather the data and evidence to support our demands of States to deliver on their duty to establish and support torture rehabilitation services according to the requirements of international law. A three-year long project will be launched in early 2014 that will bring together a number of partners providing rehabilitation services to build their skills in data collection and dissemination. Watch the IRCT website for details as that emerges and guidance on how to do this work. Using clinical data for human rights outcomes It is good practice to:       6. Assess the risks and opportunities of sharing client data or stories externally in your context and beyond including any risks that might be created for the individual survivor, the service provider and the rehabilitation center. Evaluate the ethical implications of using clinical data and develop appropriate standards and protocols for using this information that is systemwide and includes considerations by all those professional groups within an holistic rehabilitation service setting (many organizations set up a research ethics committee). Develop a policy and practice of informed client consent for the use of clinical data, protocols for ensuring confidentiality and data protection. Update the client consent regularly and ensure that it is time bounded. Develop an understanding and practice of appropriate data collection, management, research and reporting standards with an emphasis on best practices, accuracy and impartiality. Determine what information you hold and how it might best be used such as for a campaign, for advocacy, lobbying or policy making purposes. Establish a research strategy or plan of action to ensure that effective use is made of data held in clinical records and that all efforts are made to limit use of these records with a view to efficient and effective use. CARING FOR CAREGIVERS Caring for yourself in working with torture survivors is one of the most important considerations you must take, yet it is often one of the most overlooked. This could be due to a lack of institution support for the well-being of staff, workloads, time 47

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