ANNUAL REPORTOF UKRAINIAN PARLIAMENT COMMISSIONER FOR HUMAN RIGHTS 38 CHAPTER 1 Example Due to the intervention of the Commissioner following the appeal of citizen M., a resident of the city of Boryslav, Lviv oblast, the Department of Health of Lviv State Oblast Administration requested Lviv Oblast Council to consider allocation of the targeted funding from the oblast budget to provide special nutrition to phenyl ketonuria adult patients through adding the respective workstream to the regional sectorial action plan for 2019. The decision of the session of Boryslav City Council approved the municipal programme to support phenyl ketonuria patients in 2019. The implementation of the programme is entrusted to the city councils of cities of oblast significance, and it should be funded from the local budgets. Example Due to the intervention and recommendations of the Commissioner in the interests of citizen Ya. from the city of Kropyvnytskyi, the Ministry of Health included the Charge Syndrome into the List of Rare/Orphan Diseases. The Order of the Ministry of Health #2664 of 24 December 2019 “On Approving Changes to the List of Rare/Orphan Diseases that Reduce the Length of Life of Patients or Cause Their Disability and that Have Recognized Treatment Methods” approved the relevant changes and expanded the List of Rare/ Orphan Disease. Observing the citizens’ right to medical treatment abroad Within the scope of parliamentary oversight over the observance of human rights and freedoms of citizen, the Commissioner identified a systemic problem regarding violations of the rights of Ukrainian citizens who are sent for medical treatment abroad to proper healthcare, due to the inadequate control over the quality of such care. At the request of the Commissioner to address the issue, the Ministry has engaged relevant foreign and consular institutions of Ukraine that committed to assist in establishing cooperation between the Ministry of Health and other relevant health authorities in other countries, including the U.S., India, Belarus, Italy, and Turkey. The Ministry of Health has drafted and is currently endorsing with the central executive authorities the Resolution of the Cabinet of Ministers of Ukraine “On Amendments to the Procedure of Sending Citizens of Ukraine for Treatment Abroad, Approved by the Resolution of the Cabinet of Ministers of Ukraine # 1079 of 27 December 2017.” It includes the Procedure for keeping record of citizens who need referrals for treatment abroad and regulation of cooperation with charities on the avoidance of double payment for treatment of Ukrainian citizens abroad in order to reduce the burden on the State Budget and the possibility of financing the treatment of more patients who need treatment abroad.

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