The referral system in action
Once a victim has been identified, a needs
assessment is conducted, typically by a medical
doctor and a psychologist. The project developed
standard forms that centres used to conduct this
assessment, which had the dual role of assessing
the victim and strengthening the quality of the
centres’ client files. This simple form allowed all the
partner centres to collect comparable data, which
could be used to identify trends within the region the types of perpetrators, types of care provided and
their effectiveness.
Based on the needs assessment, the centre staff
decided whether a referral was necessary. If so, the
institution that could provide the most appropriate
care was identified. This approach was secured
by embedding it in a network of referral hospitals.
Between 2011 and 2015, the centres identified and
signed co-operation agreements with 18 different
referral hospitals. These agreements ensured
that victims were treated immediately and had an
increased range of options when seeking services.
By enabling centres to connect with hospitals,
the project forged new relationships between
institutions that were previously disconnected; and
in the case of the hospitals, often did not have an
understanding of the role they could play in providing
holistic care to victims of torture.
The referral hospitals provide an array of physical
rehabilitation services, including standard clinical
examinations and consultations, in addition to medicine
and other treatment prescriptions, surgery and hospital
admittance. Through a series of trainings on the medicolegal documentation of torture (using the Istanbul
Protocol), high-quality documentation of torture cases
was produced, assisting centres in their advocacy and
legal activities. These trainings targeted both hospital
and centre staff and increased the capacity of individual
participants to document torture, as well as facilitating
better co-operation between centres and referral
institutions to produce quality documentation.
The centres not only identify and refer victims to
trusted medical institutions to receive appropriate
and specialised medical care, but also provide
follow-up visits to the referral hospitals. During
these visits, victims are provided with direct
psychological support and in some cases even food.
The medical referral system also focused on
secondary victims, such as children, spouses, parents
and members of the community close to the victim.
Secondary victims were provided with psychological,
14
IRCT Great Lakes Project
1,403
89
539
90
794
415
TOTAL
BURUNDI
141
0
TOTAL MEN
769
TOTAL WOMEN
1,328
In addition to the co-ordination and provision
of services to primary and secondary victims,
rehabilitation centres offer the protection and
confidentiality that torture victims seek and need,
something state-controlled medical facilities
often cannot provide. Through their neutrality and
independence vis-à-vis state-controlled institutions,
rehabilitation centres can gain the trust of the
victims, their family and communities. An essential
element in the rehabilitation process.
520
TOTAL DRC
1,044
victims when they return to their communities, and
ensure there is follow-up at community level through
community-based rehabilitation services.
TOTAL
RWANDA
534
393
Once a victim has gone through the initial referral
process they then move to the post-referral stage.
Victims are generally counter-referred to the
rehabilitation centre after treatment. They receive
whatever further medical assistance they need,
as well as legal and psychological support. Before
returning to their community, a series of follow-up
visits are planned. In many cases, rehabilitation centres
continue this follow-up in the form of home visits for
months and sometimes even years. Victims are also
encouraged to get involved in social counselling groups
and income generating activities in the community.
TOTAL CHILDREN
884
Victims referred to specialised health
institutions for medical treatment
psychosocial and sometimes socio-economic support.
For example, in 2014 one of the centres in Rwanda
received a patient with a serious psychiatric disorder.
He was an orphan who had become the head of the
household after the Genocide, and was taking care
of his two younger sisters. During the Genocide
he suffered a serious head injury and his health
dramatically deteriorated more than a decade later
when he started to suffer from chronic psychiatric
problems. His condition had a profound psychological
and economic impact on his sisters, who were still
dependent on him. The centre referred him to a
neuropsychiatric hospital, where he received care for
long periods of time. In parallel, the centre supported
his sisters by getting them involved in income
generating activities and social counselling and
ensuring they were kept up to date on the status of
their brother’s condition. Finally, the centre provided
economic support so they could make the long trip
to visit him, and they were often accompanied by a
nurse or psychologist from the centre.
For me and my brothers,
Uyisenga Ni Imanzi got us
out of the darkness and
gave us hope for the future.
They helped me to chase
the sadness and the hatred
away. Sometimes, I lose my
strength and then everything
turns bad. But Uyisenga Ni
Imanzi is as a parent for me,
and when these bad feelings
come up, they are always
there to give me hope again.
E.R., Rwamagana, Rwanda
This means that the medical referral system is
embedded in a larger rehabilitation approach of a
holistic nature; where centres play a pivotal role in
co-ordinating, providing and following up on different
rehabilitation services. Centre staff support the
The support provided by the Great Lakes Project
demonstrated that a well-functioning medical
referral system is a basic requirement for torture
victims to regain the physical and psychological
strength required to rebuild their lives and
participate actively in society.
“I was eight years old when the
genocide happened. When my entire
family was killed, a neighbour took
care of me. I was wounded on my
leg, and the scars did not heal.
wound
Throughout my school years, the
ered
suff
and
time
would open all the
walk
ly
bare
from infections. I could
and although I am schooled in carI
mechanics, I could not find a job.
ne,
anyo
to
ing
talk
did not feel like
unity.
and I was an outsider in my comm
ly. I
I had no friends and felt so lone
started to suffer from depression.
A
“A few years ago, I met ARAMA. ARAM
the
to
me
send
decided to help me and
e my
military hospital of Kanombe wher
d to
leg was operated on. They continue
cine
be there for me and gave me medi
t
can’
I
s.
and therapeutic shoe
out
describe how it felt to walk with
gical
pain. They also gave me psycholo
and psychosocial support.
sleep.
“Before I met ARAMA, I couldn’t
that
ries
memo
I was afraid of the bad
p.
always come at night when I slee
p
Since last week, I started to slee
!
gone
are
es
tmar
again and the nigh
e
Thanks to ARAMA, I don’t feel alon
talk
to
anymore, and I have started
much
to other people again. I feel so
better now.”
B. M., Rwanda