mechanism for ensuring the right to health of the child, based on the principles of the UN Convention on the Rights of the Child. In the context of respecting the child's right to health, the People's Advocate for Children's Rights refers to his 2018 Annual Report on the observance of children's rights in the Republic of Moldova159 and brings to the attention of public authorities the issue of respecting the right to health of children suffering from rare diseases. A rare disease is considered any disease that affects less than 1 in 2,000 people. Currently, about 6000-6000 rare diseases are recognized, and about 350 million people worldwide suffer from it160. About 75% of people diagnosed with rare diseases are children. According to the World Health Organization, there are 36 million people in the countries of the European Union who suffer from rare diseases. According to official information provided by the Ministry of Health, Labour and Social Protection161, in the Republic of Moldova there is developed the List of Rare Diseases, being managed by the Center for Reproductive Health and Medical Genetics within the Institute of Mother and Child162, being completed according to practical cases. The total number of patients included in the List of rare diseases in the records of this Center, is 800 patients, with over 20 clinical conditions. The People's Advocate for Children's Rights has examined several cases in which there was invoked the violation of the right to health care by not granting personalized treatment in case of a rare disease. In 2018, for the treatment of patients with rare diseases, the MHLSP allocated from the budget the amount of 12,710 thousand MDL163, which is a very small amount, related to the number of identified cases. At the same time, the quality of life of families with children diagnosed with rare diseases, who suffer, must be taken into account, as they are put in the situation of procuring the necessary medication, consumables, etc. on their own. In the opinion of parents, the authorities need to pay more attention to the social and educational inclusion of these children. As a result of the investigation of the subject, the Children's Ombudsman found a minor involvement in the diagnosis, treatment, support and care provided to children suffering from rare diseases and their families. In other words, children with rare diseases in the Republic of Moldova, 159 http://ombudsman.md/wp-content/uploads/2020/01/RAPORT_2018_final.pdf http://www.euro.who.int/en/countries/republic-of-moldova 161 https://msmps.gov.md/ 162 https://www.mama-copilul.md/ 163 https://msmps.gov.md/ 160 90