A/HRC/22/53
presumption; therefore, “incapacity” has to be proven before a person can be designated as
incapable of making decisions. Once a determination of incapacity is made, the person‟s
expressed choices cease to be treated meaningfully. One of the core principles of the
Convention on the Rights of Persons with Disabilities is “respect for inherent dignity,
individual autonomy including the freedom to make one‟s own choices, and independence
of persons” (art. 3 (a)). The Committee on the Rights of Persons with Disabilities has
interpreted the core requirement of article 12 to be the replacement of substituted decisionmaking regimes by supported decision-making, which respects the person‟s autonomy, will
and preferences.12
28.
The Special Rapporteur on the right of everyone to the enjoyment of the highest
attainable standard of physical and mental health observed that informed consent is not
mere acceptance of a medical intervention, but a voluntary and sufficiently informed
decision. Guaranteeing informed consent is a fundamental feature of respecting an
individual‟s autonomy, self-determination and human dignity in an appropriate continuum
of voluntary health-care services (A/64/272, para. 18).
29.
As the Special Rapporteur on the right to health observed, while informed consent is
commonly enshrined in the legal framework at the national level, it is frequently
compromised in the health-care setting. Structural inequalities, such as the power imbalance
between doctors and patients, exacerbated by stigma and discrimination, result in
individuals from certain groups being disproportionately vulnerable to having informed
consent compromised (ibid., para. 92).
30.
The intimate link between forced medical interventions based on discrimination and
the deprivation of legal capacity has been emphasized both by the Committee on the Rights
of Persons with Disabilities and the previous Special Rapporteur on the question of
torture.13
Powerlessness and the doctrine of “medical necessity”
2.
31.
Patients in health-care settings are reliant on health-care workers who provide them
services. As the previous Special Rapporteur stated: “Torture, as the most serious violation
of the human right to personal integrity and dignity, presupposes a situation of
powerlessness, whereby the victim is under the total control of another person.”14
Deprivation of legal capacity, when a person‟s exercise of decision-making is taken away
and given to others, is one such circumstance, along with deprivation of liberty in prisons or
other places (A/63/175, para. 50).
32.
The mandate has recognized that medical treatments of an intrusive and irreversible
nature, when lacking a therapeutic purpose, may constitute torture or ill-treatment when
enforced or administered without the free and informed consent of the person concerned
(ibid., paras. 40, 47). This is particularly the case when intrusive and irreversible, nonconsensual treatments are performed on patients from marginalized groups, such as persons
with disabilities, notwithstanding claims of good intentions or medical necessity. For
example, the mandate has held that the discriminatory character of forced psychiatric
interventions, when committed against persons with psychosocial disabilities, satisfies both
intent and purpose required under the article 1 of the Convention against Torture,
notwithstanding claims of “good intentions” by medical professionals (ibid., paras. 47, 48).
In other examples, the administration of non-consensual medication or involuntary
12
13
14
See CRPD/C/ESP/CO/1.
Convention on the Rights of Persons with Disabilities, art. 25 (d); see also CRPD/C/CHN/CO/1 and
Corr.1, para. 38; A/63/175, paras. 47, 74.
A/63/175, para. 50.
7